We would like to thank Pencor Services, Inc., the parent company of Blue Ridge Communications for a generous donation of $428 to the Lyla Mertz Foundation in our continued mission to find a cure for Spinal Muscular Atrophy. On December 1st Blue Ridge Communications held a company wide “Dress Down Day” with employees donating $1 . . . → Read More: Team Lyla receives donation from Pencor Services, Inc. parent of Blue Ridge Communications
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This article was published by FSMA on December 19th. Isis Pharmaceuticals, Inc. announced today that it has initiated a Phase 1 study of ISIS-SMNRx in patients with spinal muscular atrophy (SMA). Isis is developing ISIS-SMNRx as a potential treatment for all types of SMA. The Phase 1 study of ISIS-SMNRx is a single-dose, dose-escalation study . . . → Read More: Isis Pharmaceuticals Initiates Phase 1 Clinical Study in Patients with Spinal Muscular Atrophy One mans junk is another mans treasure!! Have some free time on Saturday, November 5th? Come visit the flea market at the Northampton County Senior Center in Centre Square Easton. The event runs from 8 – 2 PM. Have stuff to sell? Rent a table the day of the event or just stop by to . . . → Read More: Flea Market to raise funds for SMA Attached is an update regarding a drug trial being funded by Families of SMA. These are the types of programs that our fundraising helps to support.
Repligen Corporation provided a short update in their quarterly report released today on the Phase I Trial in adult volunteers on the Spinal Muscular Atrophy Drug RG3039. This is . . . → Read More: Repligen Corporation Provides Update on the Phase I Trial for the SMA Drug 3039 Thanks for visiting!! It has been a long time coming but we finally got our new website up and running!! The new site is going to allow us to more easily keep everyone informed of all of our events and keep everyone updated on medical news and breakthroughs on SMA Research. New Updates: More Social . . . → Read More: Welcome to the new Team Lyla Website!! Families of SMA Awards 7 New Basic Research Grants for $745,000 to Develop New Approaches for SMA Therapies. October 18, 2011. In the Fall 2011 issue of “Compass” Families of Spinal Muscular Atrophy announces seven new basic research grant awards. These new awards encompass $745,000 for the basic research portion of the $3 Million in . . . → Read More: Families of SMA Awards 7 New Basic Research Grants Thanks to all who attended our 2nd Annual Dance Away SMA. The event was again a great success, we were able to raise $6,200 to donate to Families of SMA in our quest to find a cure for SMA. Thank you again, we look forward to next year’s event!! Photo’s below…. . . . → Read More: 2nd Annual Dance Away SMA |
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